Pledge to make a difference, together.
Our mission is to support those affected by Joubert Syndrome and related disorders by providing C.A.R.E. - Connection, Awareness, Research, and Education.Every other year we host a conference where physicians and families affected by Joubert Syndrome come together to learn from and connect with each other. We also provide grants to families in need and help educate families, physicians and the general public about Joubert Syndrome.