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They provide compassionate care in the later stages of life and support through the grief experience for individuals and families.
The Cystinosis Research Foundation is dedicated to finding better treatments to improve the quality of life for those with cystinosis and to ultimately find a cure for this devastating disease.CRF is committed to finding a cure through an aggressively funded research agenda. CRF issues research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new cutting-edge research ideas. We are focused and determined to improve the quality of life for our patients and to find better treatments, including a cure, for our adults and children living with cystinosis
Pathway Home provides quality care to the dying, meeting their physical, emotional, social, and spiritual needs in a supportive home environment, while respecting their individuality and maintaining their dignity in their final days. Admission is based solely on need with our regard to their age, gender, race, or spiritual beliefs
Project A.L.S. was founded in 1998, as a non-profit 501(c)3, when Jenifer Estess, a 35-year-old New York theater and film producer, was diagnosed with ALS. Told at the time of diagnosis to “max out her credit cards and eat junk food,” Jenifer instead committed her efforts to making a difference for people with ALS—and producing treatments and a cure. Historically, ALS research was conducted by committed ALS researchers working separately on various aspects of the disease. Project A.L.S. changed that approach dramatically by requiring that researchers and doctors from many disciplines work together, share data openly, and meet shared research milestones.
Bridging the healing gap, leaving a legacy of healing for future generations. To end the cycle of complex relational trauma by providing the safety, life skills, relational education, and reparative experiences a survivor needs so they can create new habits and experience optimum health in every area of life.
ALS Arizona is dedicated to improving the quality-of-life for persons with ALS. We provide movement to those who have lost the ability to walk; communication to those who have lost the ability to speak; support to those who have lost the ability to cope; and a voice and role in the fight against Lou Gehrig's Disease in Arizona.
The Team Drea Foundation funds and supports bold, innovative research to find a cure or effective treatment for ALS. We see raising awareness about this devastating disease as an opportunity to inspire people to live bravely, love joyfully, and appreciate the gift of life.
HOSPICE OF HOPE IS AN ORGANIZATION DEVOTED TO CARING FOR THE PHYSICAL, PSYCHOSOCIAL, EMOTIONAL AND SPIRITUAL NEEDS OF TERMINALLY ILL INDIVIDUALS AND THEIR FAMILIES. THE ORGANIZATION ALSO PROVIDES FOR AN ASSISTED LIVING FACILITY IN MAYSVILLE, KENTUCKY.
Since 1985, Hospice of Wichita Falls has offered a special kind of care to patients and families in 12 North Texas counties (within approximately 50-60 miles of Wichita Falls) who are coping with cancer or other life-threatening illnesses. Pain control and symptom management is the focus of hospice care. A team of physicians, nurses, social workers, aides, clergy and volunteers, along with support staff, work together to ensure the patient's physical, emotional and spiritual comfort. Most often, hospice care is provided in the patient's own home. When patients cannot safely remain at home, inpatient hospice care is provided in the W. Erle and Emma White Hospice Center.
smashSMARD is a non-profit 501(c)3 organization whose mission is to increase awareness of SMARD1 and the IGHMBP2 gene mutation in order to fund research that will lead to treatments and cures.
“Working in creative collaboration to provide quality care that transforms the lives of at-risk children and their families through the active compassion of Christ.”
Hospice of West Alabama provides support and care for persons in the last phases of incurable disease so they may live as fully and as comfortably as possible. Hospice recognizes dying as part of the normal process of living and focuses on maintaining the quality of life. Hospice affirms life and neither hastens nor postpones death. Hospice is a coordinated program of palliative and supportive services provided in both home and inpatient settings. Hospice provides physical, psychological, social, and spiritual care for dying persons and their families.