Pledge to make a difference, together.
Our mission is to provide comprehensive health care, as well as emotional and spiritual support for patients with Duchenne or Becker muscular dystrophy and their families, improving their quality of life; involving parents, doctors, volunteers and society in our organization.
Enlace Distrofia Muscular Duchenne Becker is a legally incorporated, non-profit organization serving the state of Chihuahua in Mexico. We are the only organization providing optimal medical care as well as emotional and spiritual support for Duchenne/Becker muscular dystrophy patients and their families. For the last 21 years, our organization has been developing and improving a unique model to serve Duchenne/Becker muscular dystrophy patients. During that time, we have served approximately 155 boys and young men affected by Duchenne/Becker muscular dystrophy and their families. No private of public hospital in Northern Mexico provides the specialized care needed by our patients, this is why our services include access to healthcare professionals and specialized medical care (Neurology, Cardiology, Pulmonary, Orthopedics, Physical Therapy, Endocrinology, Nutrition and Physiology); medications, X-Rays, laboratory work, surgeries, genetic testing and diagnosis. We also provide our patients and their families with psychological and end-of life counseling services, and medical equipment such as electric wheelchairs, respiratory ventilators, pacemakers, and transportation in a wheelchair accessible vehicle to and from doctors and medical appointments.